Update on Lize-Mari Wed. 10 March 2010

Lize-Mari had her fiducial markers inserted into her head on Monday at the Necker Enfantes Hospital. She chose to have it done under local anaesthesia. I think this was quite an experience for her as she told me in detail what they did and what was discussed during this procedure. The Doctors told her that these markers will always stay in her head as they are very expensive, more expensive than platinum. They struggled again to get her veins for the drips and tried 8 times. Her wrists and hands are blue all over.
Later in the evening she went for an MRI scan on her back, we are still waiting for the results(Dr. not at the hospital this week). This was the most traumatic event of the day for her. The drip came out and her blood spurted everywhere and they had to re-do the scan, she was alone as they would not let me in-they can be glad because I would have taken her out and refused that they continue with the MRI. We were only discharged at 20H40 and by this time the feeling on her head started coming back full force and of course she now started experiencing pain. Well it was only 2 degrees outside and I decided to get a taxi as I was not going to let her get in and out of trains in this cold feeling the way that she did. We got home at 21H40, glad that we were home and that the day was finished.

On Tuesday we had an early appointment (09H00) to meet with Pr. Habrand who is managing the proton treatment. We spent 2 hours with him as he explained the positives and the negatives of this procedure. She then had more scans and we were glad to get home at 19H20.

Today is a rest day and we are so glad. Lize has slept through from last night until now ! 15 hours in total, I am glad as this is obviously what she needs-rest. Tomorrow we go back again to The Institute of Gustave Roussy for more scans and for the preparation of her mask that she will need for the proton procedure. She also has to go for audio gram tests and opthamology tests before they will start the next process. They will also do some blood tests to test her hormone levels as they worked very closely to her pituitary gland. She will then get to rest for 2 weeks as the Doctors want her to be strong before they will start the next process. This will give her time to recuperate and to adjust to her circumstances.

If she feels better we can maybe go to TOWN and do some sight seeing. I would love to go to the Opera house and the Louvre museum. As Lize loves art she also wants to visit these places. Will keep you posted over the next few days.

Love

Linda